Beacon for Rare Diseases
Beacon (formerly known as Findacure) is a UK-based charity that is building a united rare disease community with patient groups at its heart. We envision a world in which no one faces their rare journey alone. Our charity upskills rare disease patient groups through trainings, guided programmes, community projects and research initiatives. We help these groups maximise their impact and deliver change for the world’s often neglected rare disease patients.
Beacon is a UK-based non-profit organisation that is building a united rare disease community with patient groups at its heart.
Our patient group trainings help these often small and voluntary organisations to form, grow, and professionalise. It is through our events and trainings that patient groups have the opportunity to connect and collaborate with others across the rare disease space.
At Beacon, we believe that no one should face their rare journey alone.
“Beacon helps make what seems impossible, possible.”
Products and services
Patient group training
At Beacon, we fully recognise the power and necessity of patient groups. We are the leading UK rare disease charity that offers patient groups the free trainings they need to reach their advocacy goals.
We upskill patient groups to help them gain the knowledge and confidence needed to advocate on behalf of their community. Our patient group trainings give rare advocacy groups the tools and connections needed to recognise their own power and potential.
We believe that patient groups simply need a helping hand and a trusted guide to walk their journey beside them, as they change the future of their rare disease.
Our free trainings help patient groups to:
- Establish and develop a patient group
- Raise awareness and understanding of their rare disease
- Provide support to patients and families
- Get ready to participate in research
Learn more and attend an upcoming training or event!
