The digital timeline will summarise a patient’s medical history in a visual way and link to key medical reports that doctors can access with the patient’s permission. Findacure will help find families to take part in research into the digital timeline and Raremark will build the timeline to launch later in 2016.
Julie Walters, founder of Raremark and a trustee of Findacure said: “There is so much to be done to help families affected by rare disease, who are often neglected by the health system, just because doctors have not seen someone like them before. The more tools – particularly emerging digital, tools - we can place in the hands of families, the better.”
Flόra Raffai, Executive Director of Findacure said: “Rare disease patients visit a range of specialists and medical practitioners, and so their medical history can become disjointed and confused. This timeline will allow patients to take control of their data and ensure both patients and doctors are on the same page."
About Raremark (www.raremark.com)
Raremark is a new service for families affected by rare disease. Its online platform removes feelings of isolation by opening up a world of trusted and verified information, including hundreds of scientific articles and medical guidelines for each disease. Searches can be easily tailored by cause, treatment and living well. Users can comment and share knowledge, connect with specialist centers of research and find out about potential drugs in development.
About Findacure (www.findacure.org.uk)
Findacure is building the rare diseases community to drive research and develop treatments. Findacure follows in the footsteps of William Bateson, the father of modern genetics, who reminded us that we should “treasure our exceptions.”
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New tech startup Raremark unites with Cambridge charity Findacure
17 February 2016
Raremark and Cambridge-based charity Findacure today announced a partnership to create the first digital, medical patient timeline. Raremark and Findacure have seen first-hand how patients with a rare condition find it difficult to explain their complex medical history to doctors. To support the technical development, Raremark has launched a crowdfunding campaign on Syndicate Room.